Upcoming Events:
PLGD Patient Roundtable: November 7, 2025 at the 2025 Hope Conference, Orlando, FL Register for the conference here
Virtual Open House for Patients and Families: 2026 Dates are now listed on our Events page.
Join the sessions here.
Rare Disease Day, Feb 28, 2026
PLGD Awareness Day, May 4th, 2026
Learn More on our Events Page!