Upcoming Events:
Virtual Open House for Patients and Families: September 4, 2025, 8pm EST; 2026 Dates Coming Soon!
Join the sessions here.
PLGD Patient Roundtable: November 7, 2025 at the 2025 Hope Conference, Orlando, FL
Rare Disease Day, Feb 28, 2026
PLGD Awareness Day, May 4th, 2026
Learn More on our Events Page!