Virtual Open House for Patients and Families: February 6, 2025, 8pm EST; May 21, 2025, 8pm EST; 3rd and 4th Quarter Dates Coming Soon!
Rare Disease Day, Feb 27-28: Join the NIH’s Virtual Event Here
May 4th, PLGD Awareness Day
3rd Annual PLGD Patient Roundtable: Dates and Location Coming Soon!
Learn More on our Events Page!
We are a non-profit organization dedicated to supporting PLGD patients and their families. We provide education and community, and we work to support research for better treatments, and better lives.
We’ve partnered with Accessia Health to open a new program, providing financial assistance to individuals living with plasminogen deficiency. The Plasminogen Deficiency disease fund will provide $500 for related travel expenses to those who qualify for assistance. To apply, visit https://accessiahealth.org/patient-programs and click the Apply Now button.
Volunteer your talents and resources to bring inspiration and hope to our community
