Our Stories:
Sharing inspiration, challenges, empathy, and hope. If you would like to submit your story about your experience with PLGD, please email us at contact@plgd.org
Community
Events:
Rare Disease Day, Feb 27-28, 2025
Join the NIH’s Virtual Event Here!
Virtual Community Engagement Sessions for Patients and their Families: Feb 6, 2025, 8pm EST; May 21, 2025, 8pm EST
We host quarterly community sessions on Zoom for patients and their families to gather, together with a volunteer from the PLGD Foundation and a Nurse Educator from Kedrion, to ask and answer questions and share our experiences.
May 4th, PLGD Awareness Day
Stay tuned for details about this year’s planned activities!
3rd Annual PLGD Patient Roundtable, Fall 2025, Details TBD
This year’s 2nd Annual PLGD Patient Roundtable, held in conjunction with the NBDF’s Bleeding Disorders Conference in Atlanta, GA was a resounding success! We hope you can join us for the next one, to be held in summer 2025. Details will be provided here soon.
Where in the World are PLGD Patients:
Add your location to our Community Map! Note: No identifying information is linked to your location.
Virtual Community
Plasminogen deficiency is a rare disease, but you are not alone. PLGD patients can be found all over the world. Join our virtual community in any of the following ways:
Plasminogen Deficiency and Ligneous Conjunctivitis Support Group on Facebook:
