Community

Our Stories:

Sharing inspiration, challenges, empathy, and hope. If you would like to submit your story about your experience with PLGD, please email us at contact@plgd.org

Hendrix

Zack

Regan

Maria

Renae

Events:

Welcome Session for Newly Diagnosed Patients and their Families

Our first virtual Welcome Session was held on May 15th, 2024. We intend to host another session towards the end of 2024. Stay tuned for dates, or reach out to us to express interest in the next session!

3rd Annual PLGD Patient Roundtable x NBDF Bleeding Disorders Conference, Summer 2025, Details TBD

This year’s 2nd Annual PLGD Patient Roundtable, held in conjunction with the NBDF’s Bleeding Disorders Conference in Atlanta, GA was a resounding success! We hope you can join us for the next one, to be held in summer 2025. Details will be provided here as soon as dates and location are announced by the NBDF.

Where in the World are PLGD Patients:

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Virtual Community

Plasminogen deficiency is a rare disease, but you are not alone. PLGD patients can be found all over the world. Join our virtual community in any of the following ways:

Plasminogen Deficiency and Ligneous Conjunctivitis Support Group on Facebook:

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